Newly Diagnosed

You are not alone.

Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.

Register with ALS United Orange County

ALS United Orange County team of professional Care Managers provide expert advice and assistance for people living with ALS, free of charge. Our office is open Monday through Friday. Please contact us at (714) 285-1088 call or text..

Learn More About ALS

Watch our series of educational videos and webinars to learn more about the disease, living with ALS, and treatment options.

Register with the National ALS Registry

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

Find a Certified Center or Clinic

ALS United Orange County collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care, based on best practices. Recognized Treatment Centers provide compassionate care in a supportive, family-oriented atmosphere.

Join a Support Group

Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life. All ALS United Orange County's Support Groups are facilitated by our professional Care Managers with extensive experience in ALS. 

Additional Resources